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Old 12-27-2014, 11:06 AM   #64
Dakini52
Senior Member
 
Join Date: Jan 2010
Location: Edmonds, WA
Posts: 202
Smile Re: Vitamin D thread -Please use this for your Vit D info.

I have been taking vitamin D for several years now. My endocrinologist diagnosed me as having low vitamin D and suggested supplements. I take 1000 IU per day and this keeps my D level really good. It is true that many have low vitamin D and don't know it. There are also prescriptions for high level vitamin D is you are really low, however, I just take an over the counter vitamin D supplement and it works great.
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.

Debbie K
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