Thread: Kadcyla success
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Old 08-13-2013, 11:16 PM   #16
Shaysmom
Member
 
Join Date: Dec 2010
Location: South Jersey USA
Posts: 10
Re: Kadcyla success

That is Awesome.

I have been on it since Jan 2013. First 3-4 infusions I didnt see improvement and was still losing weight but since April, Ive gained back 15-20 pounds!!! I feel so much better, no longer gray, gaunt and ill. Fingers crossed its working. Scans in Sept.
We took a Scan holiday. Initially bc my research hospital did not have it in the pharmacy so if I had enough progression or something wonky on scan the trial may of thrown me off, however trial (TERESA Crossover) no longer required any scans but echo after I went into crossover.
Left Trial in JUne to go back to my community hospital for treatment.Since I feel well and can eat and gain weight no one is in a hurry to scan and look for problems. I am finally getting strength back. I am almost out of tx options and well Perjeta/Taxotere left me ill 21/21 day cycle and I lost 10 pounds every cycle and was in severe pain no Quality of life.
Feel as close to normal on this drug .
__________________
10/01 dx stage III breast CA,
10/01-8/02 mastectomy, chemo, XRT
10/02 total hysterectomy
10/02 dx with mets to ovaries
10/02-10/09 Herceptin, cancer NED or stable
11/09 dx mets for 3cm medisternal mass,
start Xeloda and Herceptin
07/10 dx with mets to adrenal gland and suspicious nodules in pleural stay on Xeloda and watch
11/10 more progression
12/10 start Abraxne Herceptin once week 3 weeks one week off.
10/6/11 PET showed adrenal is very active and new mets in internal mammary
11/1/11 Start tykerb and Aromasin
2/2012 endo dx stomachmets.
3/2012 randomized to non tdm1 arm of Teresa trial.
Started Gemzar
7/27/2012 progression but too small to switch
9/10/2012 now new lymphnode b/w stomach and liver off Gemzar Still no TDM1 crossover
10/3/2012. started perjeta, herceptin, taxotere
12/2012 losing weight from constant big D, scans are stable
1/3/2013 start TDM-1 xover for Teresa trial.
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