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Old 12-21-2009, 01:14 PM   #3
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Re: SASC: Choose Your Words Carefully

Alice,

I agree, and personally I do a pretty good job of remembering, and saying, that the TREATMENT failed, not the patient. When a treatment fails, it's really traumatic and not helpful to have it put in the wrong context.

That said, I think many doctors are trying really hard to change this but they do slip up. Heck, even I occasionally slip up! Last year at San Antonio, the doctor presenting the TDM1 results slipped and said it wrong and was taken to task by an advocate during the Q&A.

I had a conversation with that doctor later in the day (we met by chance) and I told her I was in that study and doing well, and thanked her for her dedication and work. She was still beating herself up about having misspoken in the meeting! I agreed, the language we use is powerful but for me the most important thing was to keep making progress on the REAL goal of defeating cancer!

That will make semantics of "treatment failure" irrelevant
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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