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Old 02-23-2010, 06:21 PM   #5
v-ness
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Join Date: Nov 2009
Location: western ma
Posts: 280
Re: percentage of those who respond to Herceptin

i am mystified then by the Oncotype DX. my score was 56 = 33% chance of recurrence. chemo, herceptin and tamoxifen were supposed to knock that down to 12% - i could have sworn that was a 10 yr figure. so.... the 88% chance of no recurrence i was so grateful for was just meaningless? i am so confused and feeling negative about being positive.

i already drove a car into a telephone pole once and went headfirst through the windshield so i used up that favor from 'god'.

valerie
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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