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Old 10-31-2013, 12:21 PM   #21
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Re: NEDenise Downer Alert!

Denise,

If you can not complain then who can?? This is such a process, and if this is not the place you can complain and whine then that is messed up! I watched a full day of TedX video's on Sunday and took notes to remind myself to have hope, be an inspiration, self-critizing, and the last one I watched was Self Compassion!!

It said basically....How would you treat your friends? How would you treat your family? Do you treat others how you would want to be treated? A lightbulb went off in my head, and I thought it is okay to love myself (self compassion). I treat myself like my own worst enemy in my own head, and I didn't understand it.

Through the world of cancer I worked at more then others ever realize from the people around me and how sick I wasn't, and I beat myself up. Loving yourself in my own twisted head meant being selfish or self indulgent. I am alone in a 3 bedroom house with a basement if I didn't chear people on or show a positive attitude maybe the only people I have wouldn't love me anymore. Another fear of having cancer is everyone will be tired of it all, so I have to be the best, loving, caring person and do NO MATTER WHAT.

NOW after all this I have learned that only "I" will get through this and NOT loving myself gets me absolutely nowhere. It is a new thing I just started to work on after Sunday. It is saying NO, and I have done it twice this week because saying YES is killing me I feel like and if it isn't cancer then it will be "my" own worst enemy.....

Whew, after all that I just said....AGAIN if I didn't have this board to be my total honest self in a po-dunk down and be afraid, understand that you understand, ask questions about what I should do, complain, whine and whatever else anyone wants to call it I don't know what I would do.

Denise you are JUST FINE and we LOVE you!!! And we can cheer when we want too and complain when we want to because this is a safe place for us all!!! And if some don't like it then too bad don't read what you have to say and that is ON THEM!!

I hope this all makes sense because I am supposed to be working, but my brain is now exhausted. I am hear in body but I spent, and I UNDERSTAND what you are feeling, and in a weird way I hope it makes you feel better in your mind, and I am not being pollyanna positive and you are NOT ALONE!

I notice you make sure you tell everyone HAPPY BIRTHDAY!! And I think it is so nice of you to do that....You are kind hearted, loving, and a gentle spirit. I feel like I am starting to know everyone slowly but surely by posts.

Hang in there.....
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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