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Old 02-16-2016, 07:52 PM   #14
Dakini52
Senior Member
 
Join Date: Jan 2010
Location: Edmonds, WA
Posts: 202
Re: 10 years later non BRCA ovarian cancer

My daughter is in a gyn onc fellowship program in Pennsylvania currently and I know from talking to her that finding ovarian cancer at stage 1C is pretty incredible. Happily you were paying very close attention to your body. Ovarian cancer can be an ugly disease mostly due to the fact that it is often in advanced stage before it is discovered. I think good fortune is smiling on you and I wish you the very best kind of response to your treatment.
Debbie
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.

Debbie K
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