HER2 Support Group Forums - View Single Post - Working thread - what do you think the HER2+ standard of care should be really?

Donna H · 01-07-2016, 12:04 PM

I will be at 2 years since DX in March and at that time my onc said I will only see her every 6 months - unless some problem comes up. I feel like I am being kicked out of the nest. I have never had an brain scan of any type during all this. Maybe because I was only stage 2? My blood work has always been "very good" - mo's words/opinions. After care and how to get your body back instructions/information does seem lacking. I like to believe the less is more approach is because the medial team is certain I am fine now.

Prior to treatment I wish I would have asked more questions but I was so shell shocked I just went with the program. In hindsight I would have asked about how much each part of treatment affects outcomes so I could have weighed each against the side effects and diminishing returns, so to speak. Of course I think many of the side effects weren't mentioned or were glossed over.

I agree - one size does not fit all.

01-07-2016, 12:04 PM	#7
Donna H Senior Member Join Date: May 2014 Posts: 307	Re: Working thread - what do you think the HER2+ standard of care should be really? I will be at 2 years since DX in March and at that time my onc said I will only see her every 6 months - unless some problem comes up. I feel like I am being kicked out of the nest. I have never had an brain scan of any type during all this. Maybe because I was only stage 2? My blood work has always been "very good" - mo's words/opinions. After care and how to get your body back instructions/information does seem lacking. I like to believe the less is more approach is because the medial team is certain I am fine now. Prior to treatment I wish I would have asked more questions but I was so shell shocked I just went with the program. In hindsight I would have asked about how much each part of treatment affects outcomes so I could have weighed each against the side effects and diminishing returns, so to speak. Of course I think many of the side effects weren't mentioned or were glossed over. I agree - one size does not fit all.