HER2 Support Group Forums - View Single Post - Cancer in Spinal Fluid

dchips1 · 04-20-2015, 07:55 PM

Hi my name is Darita
My mets where wrapped inside my spinal column, if they want to radiate anything in brain or spine you need them to do Cyber Knife More targeted robot arm. Wish I had the opportunity before doing the other way. I was dx stage 4 breast cancer in 2006, back then it was all palliative care. All info out there was dooms day, until I found this site. Like Pauls ending (I hate to lose) it took my almost 2 years to get my onc to jump on board, get omaya placed, have 2 hospitals deny doing it. So with a very large push started It Herceptin eventually @ 100mg IT weekly and 105 IV both no preservatives, started Perjta and taxotere all iv on a cycle, Mri in march showed tumors gone just still some swelling. You just to keep your chin up, technology, advocacy, leads to prayers and changing a "death sentence" into a chronic illness. If no one close to where you live, or Dr thinks your crazy, you may need to contact a larger cancer center somewhere else? Is your primary Insurance BIA? Check and see what they will pay for? My son is Choctaw/Cherokee, and we where told he can go to any clinic, In AZ they also encourage enrollment in the state plans

I had try to post an update to my response website would not cooperate at 300am

Peace and prayers
Darita

04-20-2015, 07:55 PM	#23
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Re: Cancer in Spinal Fluid - given 6 months Hi my name is Darita My mets where wrapped inside my spinal column, if they want to radiate anything in brain or spine you need them to do Cyber Knife More targeted robot arm. Wish I had the opportunity before doing the other way. I was dx stage 4 breast cancer in 2006, back then it was all palliative care. All info out there was dooms day, until I found this site. Like Pauls ending (I hate to lose) it took my almost 2 years to get my onc to jump on board, get omaya placed, have 2 hospitals deny doing it. So with a very large push started It Herceptin eventually @ 100mg IT weekly and 105 IV both no preservatives, started Perjta and taxotere all iv on a cycle, Mri in march showed tumors gone just still some swelling. You just to keep your chin up, technology, advocacy, leads to prayers and changing a "death sentence" into a chronic illness. If no one close to where you live, or Dr thinks your crazy, you may need to contact a larger cancer center somewhere else? Is your primary Insurance BIA? Check and see what they will pay for? My son is Choctaw/Cherokee, and we where told he can go to any clinic, In AZ they also encourage enrollment in the state plans I had try to post an update to my response website would not cooperate at 300am Peace and prayers Darita __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.