HER2 Support Group Forums - View Single Post

AlaskaAngel · 06-05-2010, 11:32 AM

Hi, sorry not to have responded sooner -- I read the initial post and had thought that only those who received trastuzumab were included in the tally. And as a Stage 1 I do find it hard to post about still being "NED" because it is so unfair that so many others never even got the chance to "start" from an early diagnosis. At the same time, I do post about it to encourage people who are just terrified about being diagnosed at all, because maybe if they know that someone diagnosed as "high-risk" stage 1 with high-grade HER2-positive disease, and who has NOT even had all the treatments available now and is still NED, they will feel a little less panicked.

AlaskaAngel

Dx January, 2002, still NED
CAFx6 (4 weeks apart, not 3, due to declining blood boosters)
Radiation
tamoxifen x 1 3/4 years as a strongly ER+, PR+
No taxane
No trastuzumab
No AI
Use of nightly melatonin, freshly ground flaxseed, diet and exercise in hope these things help with prevention of recurrence.

06-05-2010, 11:32 AM	#58
AlaskaAngel Senior Member Join Date: Sep 2005 Location: Alaska Posts: 2,018	Re: Five years out??? Hi, sorry not to have responded sooner -- I read the initial post and had thought that only those who received trastuzumab were included in the tally. And as a Stage 1 I do find it hard to post about still being "NED" because it is so unfair that so many others never even got the chance to "start" from an early diagnosis. At the same time, I do post about it to encourage people who are just terrified about being diagnosed at all, because maybe if they know that someone diagnosed as "high-risk" stage 1 with high-grade HER2-positive disease, and who has NOT even had all the treatments available now and is still NED, they will feel a little less panicked. AlaskaAngel Dx January, 2002, still NED CAFx6 (4 weeks apart, not 3, due to declining blood boosters) Radiation tamoxifen x 1 3/4 years as a strongly ER+, PR+ No taxane No trastuzumab No AI Use of nightly melatonin, freshly ground flaxseed, diet and exercise in hope these things help with prevention of recurrence.