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Old 07-15-2010, 03:32 PM   #11
Leslie304
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Join Date: Jun 2009
Location: Hunterdon Cty, New Jersey
Posts: 51
Re: hot off the press--targeted therapy in IBC review article

Hi Alice, Good to hear from you! I actually have to post my most recent picture sometime! That one is a 'wig' picture with my sister (as if you couldn't tell we were sisters!) She's been my rock through this. You've got me worried now. My onc took me off all meds as of June 10th. I'm NED right now, but every day that goes by off meds makes me worry. I'm such a high risk case. She has me coming back to her every 4 months. It still feels like forever in between. I want to be off drugs but I don't at the same time. What do you think? I never was able to work out coordination of oncs between MDA and MSKCC. They each want me to choose one or the other and since I started at MSKCC I don't have a local onc. If you were me would you push for another year of Herceptin? It didn't really work for me visibly (didn't shrink the tumor) but she said there was still belief that it could be working on microscopic cells. I'm just not as knowledgeable as you are about it all. It still really freaks me out.
__________________
2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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