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Old 08-04-2015, 08:15 AM   #1
KeriK
Senior Member
 
Join Date: Jan 2014
Location: Las Vegas
Posts: 26
Looking for advice and suggestions please

I come to you all looking for some hope with my newest challenge, brain mets!
I have been doing so well, working full time and 2 yrs of normal markers. This upcoming Fri was going to be my last kadcyla round. My dr was actually going to take me off and just closely monitor me!
Then on Sunday, out of the blue, my left side of tongue and lips went completely numb followed by uncontrollable twitching to the left side of face. I thought I was having a stroke long story short, a MRI revealed brain mets. 10 tumors! 5 of them large! I will be seeing my onc on Friday but wanted to start researching treatment options and clinical trials.
Please share with me any helpful links or suggestions
I'm not ready for this to be over! I have two young girls that need me!!
Thank you all, from the bottom of my heart

Keri
__________________
[/SIGPIC]37 years old
12/10 her 2+, ER+ invasive ductile carc stage 3C
1/11 taxol herc 12 wks
4/11 FEC herc 12 wks
8/11 masectomy 48 lymph nodes removed
9/11 tamoxifen
10/11 radiation thru Dec
11/12 recon!
12/12. It's back. :( mets to liver and lungs
Stopped tamoxifen
1/13 TDM1 expansion trial
4/13 lung mets gone 65% reduction in liver markers in low teens!
12/13 lungs still clear! Liver mets reduction
12/13 opherectomy
1/14. Tumor markers increasing. 30's now
2/14 TMs back in high teens
4/14 increased calcium levels
5/14 Xgeva to kadcyla. Scan showed tiny scar tissue on sternum, not previously ever seen
8/14 NED
12/14 NED!!
4/15. NED. YAY! Dr thinking about stopping kadcyla
7/15 still NED. LAST KADCYLA SCHEDULED FOR 9/3
8/15 left side of tongue and lips went numb, brain MRI revealed 10 lesions all over the brain. :(
8/15. Tumor markers still in high teens ???
8/15. 15 rounds of Whole Brain Radiation
Started an Alzheimer's medicine, Namenda, to help preserve brain cognition.
9/15 started Afinator and Tykerb
10/15. Brain MRI. 7 rumors left, nothing new, nothing growing
12/15. 3 sessions of cyber knife
3/16 MRI stable. Nothing new nothing growing nothing shrinking
5/16. MRI. 4 existing tumors doubled in size and 2 new tumor
Looking into clinical trials
6/16. 6 2 hr sessions of cyber knife
10/16 stable MRI
11/16 back in the body.......lungs liver lymph nodes sternum
11/16 abraxane herceptin xgeva
12/16 lungs clear but now 2 tumor in liver
2/17 Opdivo ibrance Tykerb xgeva
KeriK is offline   Reply With Quote