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Re: Just Herceptin and Perjeta - side effects
I had a pretty severe lung reaction after my first infusion of Perjeta and my onc is viewing that as an allergic reaction. CT Scan showed no blood clot on my lungs so I will just be going back to Herceptin only which has kept me in remission for 5+ years now. I also had the same type of allergic reaction to Tykerb. I'm just hoping the Herceptin continues to work as well as it has and that other options become available should I need them down the road. There are some types of lung reactions associated with Perjeta I believe, but those who have been on it for awhile should respond if they are having issues. Mine were within a couple of days after receiving the initial Perjeta infusion.
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.
Debbie K
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