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Old 03-21-2008, 09:57 PM   #6
hutchibk
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Join Date: Oct 2005
Posts: 3,519
I love 'em all! Good stories! My only story that might fit is the one about my mother-in-law about 4 months after she passed away... We were visiting my father-in-law in Florida for a week, and one morning M. and his dad awoke before dawn to take a 1/2 day trip that I wasn't going on with them. So, I slept in his sister's old bedroom so I could sleep in undisturbed. When they were leaving that morning, I awoke in a half-awake fog when I heard the garage door go up. I remember noting that dawn was just breaking as I saw a mild light on the wall that my head was turned toward, and I was sleeping on my stomach. I started to doze off again when suddenly I felt a weight sit down on the end of the bed... I tried to open my eyes and shift and turn to see who it was, figuring that M. was stopping in to kiss me goodbye as they left. Then I heard the garage door go down and the car drive away... but the weight was still sitting on the end of the bed. I tried and tried to wake up and turn over, but I was paralyzed in my position, and then I felt the most gentle and comforting sensation on my back, like some sort of energy was rubbing my back, but without really touching me. It was so loving and gentle that it lulled me to a half-doze again, and I stopped worrying about opening my eyes or trying to turn over. I totally relaxed. It was amazing. And after about 15 seconds, I suddenly knew that it was a visit from M.'s deceased mom. It felt exactly like one of her famous back-rubs. A few seconds later, I suddenly felt the energy that had been rubbing my back and the weight at the end of the bed just evaporate, kind of like it was been suctioned away, but not in a jarring way. At that moment, I was no longer paralyzed and was able to open my eyes, turn over and sit up (like a bolt of lightening!) and I smelled a faint smell of cigarettes (she was a lifelong smoker who died of lung cancer) and her perfume. It was so freaky and so awesome at the same time. I will never ever forget that experience and the feeling of her energy sitting on the bed. It was totally cool.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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