Hi Eric,
I think of you and Caryn often as you both have been such a beacon of hope for me during our journeys with this illness. I am sorry that her bilirubin is up and down; I wish I had a suggestion for you. Have you considered exploring any more clinical trials? I understand there is another great tri-vaccine trial in Baltimore that Dr. Disis from Seattle tumor vaccine group recommended to me; would you consider looking into that one; or another?
I understand that feeling of scared - I have found great comfort in this beautiful Irish poem - I am hoping it will speak to you as well.
It is called A Blessing for a Friend on the Arrival of an Illness
This is a site to hear the author read it:
http://odeo.com/episodes/22146100-SO...val-of-Illness
Blessings and hope and prayers for you both.
Love Kim from CT
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2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
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