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Re: Starting WBR tomorrow...nervous & scared
Jessica, from me too hugs hugs hugs hugs. No life is not fair and living in fear and sometimes pain is so hard you have been a trooper here I have nothing butr admiration for you. All you can try to do I think is to let go of the fear what ever will happen will happen whether you are in fear or not. Yes you will be radiated and its really horrible but others have been ok through it and I hope you will be one of them, in some stupid ways there is nothing else to do. The fear is telling you to avoid more treatments and WBR is scarry but all you can do is visualise these tumours going, we love you and pray/send good vibes to you.
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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