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Old 01-03-2014, 09:30 AM   #11
'lizbeth
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Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: Clinical Trial Participation Tied to Improved Breast Cancer Outcomes

Well to be honest Jackie I had a huge group of specialists all working together with a breast health nurse who was the case manager. They all met for tumor board.

I actively did my own research and based my decisions on the latest studies I could find - many times the tumor board and my choices did not agree and I happily signed waivers.

My oncologist pulled his hair out, but was quite indulgent - if he found my logic to be sound, if not overuled, lol!

I did not follow up with surgeons but with oncology at my hospital. My PCMs turn over ever couple years (interns & residents usually) so don't rely on them for follow up.

Good points. Still don't want surgeons to be in charge of my oncology decisions - so am a pass on the alert system.
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