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Old 07-22-2014, 09:53 AM   #2
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Join Date: May 2010
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Re: Update on lymphedema ?

Hi Pray, I have never had lymphadema tho I wear a sleeve for lifting and flying. I have had infections in the skin at my nails that seems to cause a backup in lymph. I can actually see what looks like beads running up my lower arm that are tender. Once I had a cellulitis but not swelling per se. I am careful and watch, to catch things early and knock wood have been able to take care of them w oral antibiotics. I have called my family practice in off hours right away. We have 24 pharmacy near by. So I'll start the meds and go see her when they are open again. We have a trustworthy relationship so that may help.
Good luck with yours. Cathy
PS, if I lifted my arm the "beads" got smaller because it helped drainage. Can't hurt to elevate and keep it moving up and down
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3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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