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Old 08-15-2010, 02:31 PM   #14
Jackie07
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Join Date: Jan 2008
Location: "Love never fails."
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Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

I also have Mitral Valve prolapse and went through 6 rounds of FEC (Fluouracil, Epirubisin, Cytoxan) in 2003 after a right lumpectomy for a 1.2 tumor.

Your wife's doctor probably will be more concerned about her liver met. Because of the heart function issue and possible recurrence (my full-year Herceptin was cut short at 22 weeks during the TCH + H treatment for the recurrence found in 2007)

Several of our members have the experience of treating liver mets. If you type 'Liver mets' in the 'Search' window, you can pull all the threads related to the topic. The Seattle vaccine trial seems to be very effective. And the very exciting TDM-1 trial has been said very likely to get approved by next January.

Positive thinking and regular exercise increase the release of 'Endorphin' from our brain and will improve our immune ability to fight diseases.

Please let your wife know that she's got a league of women (and a few men) fighting along with her. I'm sending good vibes...
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Jackie07
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NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 03-27-2011 at 12:07 PM..
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