HER2 Support Group Forums - View Single Post - 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

SunDiego · 07-28-2010, 03:52 PM

A few updates... my wife found a great medical oncologist she is very comfortable with that came highly recommended. Along with a second (or was that a third opinion?) from City of Hope (sister-in-law works for COH in fundraising department), we're confident that the recommendations are all lining up and my wife is on the right track. That track is...

- full restaging: PET/CT, bone scan, 2D echo, blood panels, brain MRI, re-reading of lumpectomy slides
- install Port Cath (into arm, not chest)
- meet with "cranial prosthesis" makers before hair falls out
- TCHx6 starting August 9 (will join the "Chemo August 2010" thread), followed by additional Herceptin every 3rd week to finish out the full year
- Bi-monthly PET scan to monitor liver (liver blood panel came back yesterday 'normal', so hopefully that means it is more likely to be the "adenoma", but the regular monitoring in a few months after chemo starts will further confirm this (pray it shrinks or doesn't grow at least)
- after the year look at next steps, to possibly include Tamoxifen (w or w/o Lupron) and who knows? (12 months scientists... work hard and fast!)
thank you everyone for all the support, it has helped immensely. Wife enjoys reading the responses, so keep it coming! Thank you!

07-28-2010, 03:52 PM	#7
SunDiego Senior Member Join Date: Jul 2010 Posts: 34	Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin??? A few updates... my wife found a great medical oncologist she is very comfortable with that came highly recommended. Along with a second (or was that a third opinion?) from City of Hope (sister-in-law works for COH in fundraising department), we're confident that the recommendations are all lining up and my wife is on the right track. That track is... - full restaging: PET/CT, bone scan, 2D echo, blood panels, brain MRI, re-reading of lumpectomy slides - install Port Cath (into arm, not chest) - meet with "cranial prosthesis" makers before hair falls out - TCHx6 starting August 9 (will join the "Chemo August 2010" thread), followed by additional Herceptin every 3rd week to finish out the full year - Bi-monthly PET scan to monitor liver (liver blood panel came back yesterday 'normal', so hopefully that means it is more likely to be the "adenoma", but the regular monitoring in a few months after chemo starts will further confirm this (pray it shrinks or doesn't grow at least) - after the year look at next steps, to possibly include Tamoxifen (w or w/o Lupron) and who knows? (12 months scientists... work hard and fast!) thank you everyone for all the support, it has helped immensely. Wife enjoys reading the responses, so keep it coming! Thank you!