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Jackie07 · 12-23-2011, 03:57 PM

Hi,

A family history of ovarian cancer could put you in the category of HNPCC http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1226142/

I opted for bilateral mastectomy in 2007 when we discovered the recurrence from a 2003 lumpectomy because I didn't feel like I could trust the medical exam/mammagram that had failed to detect the recurrence for 4 years. Later my BRCA test only showed a 'variant of unknown significance'. The genetic counselor and I discussed about it and I put it in the back of my head... Unitil I was informed about 2nd Brother's colon cancer a few months afterwards.

Combined with Mother's Non-Hodgkins Lymphoma, I located the cluster called HNPCC that seems to explain our family cancer history (I have brain tumors besides breast cancer). So I requested for a hysterectomy/oophorectomy and was approved by the insurance company based on 'personal/family cancer history'.

I did not have reconstruction as I'd always been 'flat-chested'. All my padded bras still fit.

If you use the 'Search' button, you can find previous discussions about 'reconstruction' and 'prophylactic mastectomy'.

12-23-2011, 03:57 PM	#2
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Prophylactic Mastectomy? Hi, A family history of ovarian cancer could put you in the category of HNPCC http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1226142/ I opted for bilateral mastectomy in 2007 when we discovered the recurrence from a 2003 lumpectomy because I didn't feel like I could trust the medical exam/mammagram that had failed to detect the recurrence for 4 years. Later my BRCA test only showed a 'variant of unknown significance'. The genetic counselor and I discussed about it and I put it in the back of my head... Unitil I was informed about 2nd Brother's colon cancer a few months afterwards. Combined with Mother's Non-Hodgkins Lymphoma, I located the cluster called HNPCC that seems to explain our family cancer history (I have brain tumors besides breast cancer). So I requested for a hysterectomy/oophorectomy and was approved by the insurance company based on 'personal/family cancer history'. I did not have reconstruction as I'd always been 'flat-chested'. All my padded bras still fit. If you use the 'Search' button, you can find previous discussions about 'reconstruction' and 'prophylactic mastectomy'. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 12-23-2011 at 04:00 PM..