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Hi everyone:
I had my first WBR treatment today, the first of 20. Christine told me about a drug specifically for b/c mets to brain that has been in a phase III clinical trial and has now been fast-tracked to the FDA. The drug apparently greatly enhances WBR. The problem is that the drug is now unavailable. A dr.'s office in Dallas was a part of the clinical trial, but it's now closed. The word is that they are not releasing the drug even on a "compassionate" basis. I found out that they give an infusion of the drug 10 times--about half of my prescribed 20 treatments. I am praying that this drug will be available to me soon. Also, I hope to feel better soon. My head hurts quite a bit. Does anyone have any predictions for feeling better? (or worse, as the case may be). I'm also lethargic and sleepy.
Carla
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