Hi Diana and whoever else is discussing this,
Yes. There can be side effects with Herceptin, but they may or may not be as intense or as interesting to doctors as the side effects of chemotherapy.
I am happy to hear the Herceptin manufacturer may be doing a study on this. In the meantime patients should be able to get a list from the Herceptin website. I think that might be
www.herceptin.com.
Each person's body is different, so each person taking Herceptin may not be experiencing the same side effects as other people, but as patients speak up more and more the side effects may become more well known and accepted by doctors.
I get tired. Some of my other symptoms doctors have not been able to find a cause for may actually be Herceptin side effects. Who knows? Anything is possible.
Hang in there. Side effects may be unpleasant, but considering the advantages of Herceptin they may be something we have to learn to manage. At least we are alive and kicking. That is a blessing.
peace,
ElaineM