HER2 Support Group Forums - View Single Post - Please post your two cents on Herceptin "side effects" real or perceived!

Andrea Barnett Budin · 01-20-2008, 07:16 PM

Hi Hazel!

I believe the sever muscle pains you are experiencing may come from the Taxol. I had the same from Taxotere (a cousin) and for many mnths after finishing T, yet continuing on Herceptin. Finally, I no longer have that terrible pain in my arms and legs. The neuropathy in my fingers and toes has gone.

I have been on H for over 9 yrs and have no side effects but for chronic fatigue, flagging red bld cell count. I hope your terrible cramps soon subside...

BE WELL, Hazel... As you can see from my signature, I am very lucky. Somehow, it can always be worse.
Andi

01-20-2008, 07:16 PM	#355
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	My Experience... Hi Hazel! I believe the sever muscle pains you are experiencing may come from the Taxol. I had the same from Taxotere (a cousin) and for many mnths after finishing T, yet continuing on Herceptin. Finally, I no longer have that terrible pain in my arms and legs. The neuropathy in my fingers and toes has gone. I have been on H for over 9 yrs and have no side effects but for chronic fatigue, flagging red bld cell count. I hope your terrible cramps soon subside... BE WELL, Hazel... As you can see from my signature, I am very lucky. Somehow, it can always be worse. Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...