HER2 Support Group Forums - View Single Post - Adding Carboplatin to Perjeta and Herceptin

Andrea Barnett Budin · 08-16-2012, 08:33 AM

Dearest Sheila,

Always always always thinking of you. You are one of the most remarkable women I've ever had the pleasure to know. (Even if it is a cyberspace love affair...)

My husband is diabetic and having major nerve issues (eye and thigh, ulna). The doc has recommended just what I've been pleading with him to take. He's not a supplement person. But since the endocrin lady told him, he's added some.

B12 (helps energy as well as nerve repair) and B6. Also Alpha Lipoic Acid (600 mg), L-Carnitine 500 x 2 and Co-enzyme Q-10 -- 150 X 2.

I pray these will help you get some relief. And, of course, that your new recipe will be effective and kick canser's butt!

Much love, as always, always, always,

Andi

08-16-2012, 08:33 AM	#14
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Adding Carboplatin to Perjeta and Herceptin Dearest Sheila, Always always always thinking of you. You are one of the most remarkable women I've ever had the pleasure to know. (Even if it is a cyberspace love affair...) My husband is diabetic and having major nerve issues (eye and thigh, ulna). The doc has recommended just what I've been pleading with him to take. He's not a supplement person. But since the endocrin lady told him, he's added some. B12 (helps energy as well as nerve repair) and B6. Also Alpha Lipoic Acid (600 mg), L-Carnitine 500 x 2 and Co-enzyme Q-10 -- 150 X 2. I pray these will help you get some relief. And, of course, that your new recipe will be effective and kick canser's butt! Much love, as always, always, always, Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...