HER2 Support Group Forums - View Single Post

CourtneyL · 08-30-2011, 04:48 PM

Hi Kristin - I'm in the under 40 club also. I felt my lump at 29 but was misdiagnosed as having "dense tissue". Fast forward 7 months and I was finally diagnosed with widespread metastatic disease with tumors to the lungs, liver, and bones. It was too late to save my fertility. I had to start aggressive treatment right away. This was in April of 2008. The rest of my stats are below. Since then, brain mets have really been my biggest problem but they have all been successfully treated. I am doing well and continue to enjoy life with my husband. I'll send you a pm with my caringbridge site since you asked in a previous thread. Its nice to meet you and and I wish you MUCH success in your journey. And if you are interested, I knew a girl who was stage IV (not her2 positive) who has since passed but she and her husband did the surrogate thing successfully as she was in treatment. They had a baby girl a few months before she died. Its tragic but at least her dream of becoming a mother came true. And she is now being raised by a very loving and wonderful father who will now always have a little part of his wife's legacy in his daughter.

Blessings to you!

08-30-2011, 04:48 PM	#16
CourtneyL Senior Member Join Date: Aug 2008 Location: San Francisco Posts: 260	Re: Women under 40 Hi Kristin - I'm in the under 40 club also. I felt my lump at 29 but was misdiagnosed as having "dense tissue". Fast forward 7 months and I was finally diagnosed with widespread metastatic disease with tumors to the lungs, liver, and bones. It was too late to save my fertility. I had to start aggressive treatment right away. This was in April of 2008. The rest of my stats are below. Since then, brain mets have really been my biggest problem but they have all been successfully treated. I am doing well and continue to enjoy life with my husband. I'll send you a pm with my caringbridge site since you asked in a previous thread. Its nice to meet you and and I wish you MUCH success in your journey. And if you are interested, I knew a girl who was stage IV (not her2 positive) who has since passed but she and her husband did the surrogate thing successfully as she was in treatment. They had a baby girl a few months before she died. Its tragic but at least her dream of becoming a mother came true. And she is now being raised by a very loving and wonderful father who will now always have a little part of his wife's legacy in his daughter. Blessings to you! __________________ 4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++ April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response! Sept 08-Dec 08: Herceptin +Zometa for maintenance. Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait. April 09: Gamma Knife 10 brain mets, add Xeloda. Sept 09: Gamma Knife to 1 brain met. Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa. May 10- Sept 10: HER2 Vaccine Trial Sept 10: Add Tykerb for more brain mets. Oct 10: Gamma Knife to 7 brain mets. Dec 10: Switch from Zometa to Denosumab. Jan 11: Gamma Knife to 3 brain mets. March 11: Gemzar/Herceptin for lung/bone progression. April 11: More brain mets - Intrathecal Herceptin June 11: Ixempra/Herceptin for lung, soft tissue progression. Aug 11: Gamma Knife Sep 11: Abraxane/Herceptin Future: NED Send me a PM if you'd like to follow my journey on Caringbridge.