|
Re: Trying to decide whether to take Tykerb
Hi Lucy, so nice of you to reply. Sometimes I feel like posting here gives my husband and I a chance to think aloud as we go through this journey. I just had an MRI in Jan so my next one is in April, about 7 weeks away. I got a second opinion at UCSF and that onc said Tykerb is an option if I wanted. At first, when I discovered the brain mets, I wanted to take it right away. But after rads, (and recovery, the fatigue and headaches were awful after just those 2 SRS sessions, I feel so much better. I'm actually feeling like my normal self again (well, except for what seems like long term neuropathy and sleepless nights). But then I think, those pesky mets can creep up on me at any time. I don't know if I want to deal with the SE of Tykerb right now. Still thinking on it. Hoping others will chime in, for any feedback.
__________________
June 2013 DX Stage 3 Idc, rt breast, er/pr-, her2+++
PET/CT/Brain MRI clear
ACTHP until Dec 2013
BMX Dec 2013
28 Rads Feb 2014
Exchange surgery June 2014
Herceptin end Sept 2014
Headaches start Oct 2014
CT body clear Nov 2014
Brain MRI 4 lesions Nov 2014
SRS via LINAC in Dec 2014
Rt side infection, hospitalized, lost right implant on Jan 1, 2015
Jan 14 2015 MRI brain lesions shrinking
Jan 27 2015 Re-start herceptin every 3 weeks
Feb 2015 CT/PET Body clear
Re-start Lymphedema treatment April 2015
Breast MRI clear April 2015
Brain MRI April 2015 - shows everything stable, nothing new (whew)
CT scan June 2015 - clear
|