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Old 12-15-2013, 11:27 AM   #8
JillaryJill
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Join Date: Aug 2011
Posts: 271
Re: Breast Reconstruction After Radiation

I had bilateral mastectomy, tissue expanders placed at that time (tissue expanders were one of the worst experiences of all the breast cancer procedures I had) I never got used to the hard feelign of those expanders and the saline fills to stretch the skin were painful. I had alot of radiation to a large field on my chest. I am of German/Irish descent with very pale skin. My silicone replacement surgery went fine. My surgeon did do some fat injections (lipo from my stomach and I was very bruised from this) and he also used a product called Alloderm which you can google. I did not elect to have nipple surgery or tatoo, by then I had enough of doctors and surgeons. I live on a lake and I am in a bathing suit often, and the result is good. I have a nice shape in clothes. My radiation side is tighter, but I did massage and used alot of coconut oil to keep the skin soft. My result is excellent. There was an argument between my radiation oncologist and my plastic surgeon (lots of Ego's) about the amount of saline in the expanders at the time of radiation. My regular onc had to mediate. The plastic surgeon said I could have full fill in the expanders, my radiation onc wanted some of the fill taken out. She won the battle. Once radiation was complete, I continued with more fills.
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DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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