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NEDenise · 08-02-2012, 09:35 AM

Thanks everyone!
Small change in plans...we've decided to wait till the bone met biopsy before starting Lapatnib and Herceptin. There is apparently another bisphosphonate (instead of Zometa) if the met turns out to be ER+. So I won't start having to do any new side effects until after the Gamma is done. Sounds good to me!

Also had the chance to meet with my new Medical Onc. So far, I really like her. My first one will be a tough act to follow, but the new one seems to listen to my concerns, and does not seem at all threatened by the considerable knowledge base you have all helped me gather. So...once again...things look good.

Becky, you are so sweet!! I would love to meet up someday for lunch, or coffee, or just a hug! Right now I feel about as good as I have in about 4 years. Hoping all these treatment options can keep me feeling that way!

In fact...I wish there were a way we... lots of us... could meet and greet one of these days. Coffee in Times Square? Tea in Williamsburg? Who knows!

Paul, haven't read your PM yet...but getting more excited to hear the news every second! Talked to the new med. onc. about IT Herceptin being a possibility on my horizon, and she seemed to know more about it than the others I've spoken to. She thinks it's a very promising treatment...but she's young, and I'm not sure she's ready to make that kind of jump yet. I guess that's okay. I'm not quite there yet myself...still waiting for scan results.

So...waiting for MRI to be scheduled. Waiting for MRI results. And trying to get my house cleaned before I go back to work!

Thanks for all the prayers and good wishes! You guys give me so much strength, and keep my spirits high!
Hugs!
Denise

08-02-2012, 09:35 AM	#14
NEDenise Senior Member Join Date: Aug 2011 Location: Philly Suburbs Posts: 1,709	Re: Good News...Bad News...Okay News Thanks everyone! Small change in plans...we've decided to wait till the bone met biopsy before starting Lapatnib and Herceptin. There is apparently another bisphosphonate (instead of Zometa) if the met turns out to be ER+. So I won't start having to do any new side effects until after the Gamma is done. Sounds good to me! Also had the chance to meet with my new Medical Onc. So far, I really like her. My first one will be a tough act to follow, but the new one seems to listen to my concerns, and does not seem at all threatened by the considerable knowledge base you have all helped me gather. So...once again...things look good. Becky, you are so sweet!! I would love to meet up someday for lunch, or coffee, or just a hug! Right now I feel about as good as I have in about 4 years. Hoping all these treatment options can keep me feeling that way! In fact...I wish there were a way we... lots of us... could meet and greet one of these days. Coffee in Times Square? Tea in Williamsburg? Who knows! Paul, haven't read your PM yet...but getting more excited to hear the news every second! Talked to the new med. onc. about IT Herceptin being a possibility on my horizon, and she seemed to know more about it than the others I've spoken to. She thinks it's a very promising treatment...but she's young, and I'm not sure she's ready to make that kind of jump yet. I guess that's okay. I'm not quite there yet myself...still waiting for scan results. So...waiting for MRI to be scheduled. Waiting for MRI results. And trying to get my house cleaned before I go back to work! Thanks for all the prayers and good wishes! You guys give me so much strength, and keep my spirits high! Hugs! Denise __________________ 1/11-needle biopsy 2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes 3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH! 4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks 8/26/11 finished Taxol!!! 10/7/11 mastectomy/DIEP recon 11/11 radiation x28 1/12/12 1st CANCER-VERSARY! 1/12 Low EF/Herceptin "Holiday" :( 2/12 EF up - Back on Herceptin, heart meds 4/2/1212 surgery to repair separated incision from DIEP recon 6/8/12 Return to work :) 6/17/12 Fall, shatter wrist,surgery to repair/insert plate :( 7/10/12 last Herceptin 7/23/12 Brain Mets %$&#! 3cm and 1cm 8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb 8/23/12 Back to work 12/20/12 Injure back-3 weeks in wheel chair 1/12/13 2nd CANCER-VERSARY! 1/14/13 herniate disk in back - surgery to repair 1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm 5/3/13 Start Avastin to shrink necrosis 5/10/13 begin weaning steroids 6/18/13 Brain MRI - Avastin seems to be working! 6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear! 7/5/13 finally off steroids!! 7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin! 7/13/13 Symptoms return - back on steroids 7/26/13 Back on Avastin - try again! 8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :) 9/9/13 Brain MRI - fingers crossed “ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert