HER2 Support Group Forums - View Single Post - Cracking Cancer....A Cdn production but I believe something similar is done at Yale

Cathya · 03-17-2017, 01:34 PM

Tiffany;

Why aren't you taking an anti-hormone treatment. I don't know your age but I took arimidex. I always felt that that treatment was more effective for me than herceptin as I was only Her2++ not Her2+++ like most of the hormone negative women.

I was very fortunate with the ovarian cancer and was diagnosed stage 1 and so far so good. As I said I had a VUS on the BRCA.....an unknown variant. However, I have been told that having 2 different cancers I am high risk.....big surprise lol.

Also, years ago I remember there was an organization who provided free travel for cancer patients. I believe it was by air.

Cathy

03-17-2017, 01:34 PM	#17
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: Cracking Cancer....A Cdn production but I believe something similar is done at Ya Tiffany; Why aren't you taking an anti-hormone treatment. I don't know your age but I took arimidex. I always felt that that treatment was more effective for me than herceptin as I was only Her2++ not Her2+++ like most of the hormone negative women. I was very fortunate with the ovarian cancer and was diagnosed stage 1 and so far so good. As I said I had a VUS on the BRCA.....an unknown variant. However, I have been told that having 2 different cancers I am high risk.....big surprise lol. Also, years ago I remember there was an organization who provided free travel for cancer patients. I believe it was by air. Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18 Last edited by Cathya; 03-17-2017 at 01:38 PM..