HER2 Support Group Forums - View Single Post

v-ness · 10-09-2012, 07:59 PM

harrie - how much hair did you lose on Femara and was it gradual or rather sudden? i had to can Arimidex because of a multitude of side effects. now i am on Femara and i was cruising along pretty well with just the standard bone pain when i noticed thinned hair to my touch on the crown of my skull. i asked two people to look and they verified it for me. i have really thick curls everywhere else, and yet there it is straight and about half the hair i had 2 months ago. i fear that if this is how much hair i've lost this fast... what will happen in 3 yrs on this stuff? someone said to me "well we have no choice", but i beg to differ. it's very upsetting to lose your hair and go bald on chemo. you get used to it, but still.... and then you slowly get your hair back. i had 2 uneventful years on tamoxifen and then had to start these AI's, being post-menopausal thanks to a complete hysterectomy. i wonder and wish i could just go back on tamoxifen, the devil i already know.

anyway, i would love to hear about the experiences of others on femara with their hair and how you dealt with it. did you take Biotin, other supplements, use Rogaine? anything. thank you! valerie

10-09-2012, 07:59 PM	#6
v-ness Senior Member Join Date: Nov 2009 Location: western ma Posts: 280	Re: Post Femara and hair loss harrie - how much hair did you lose on Femara and was it gradual or rather sudden? i had to can Arimidex because of a multitude of side effects. now i am on Femara and i was cruising along pretty well with just the standard bone pain when i noticed thinned hair to my touch on the crown of my skull. i asked two people to look and they verified it for me. i have really thick curls everywhere else, and yet there it is straight and about half the hair i had 2 months ago. i fear that if this is how much hair i've lost this fast... what will happen in 3 yrs on this stuff? someone said to me "well we have no choice", but i beg to differ. it's very upsetting to lose your hair and go bald on chemo. you get used to it, but still.... and then you slowly get your hair back. i had 2 uneventful years on tamoxifen and then had to start these AI's, being post-menopausal thanks to a complete hysterectomy. i wonder and wish i could just go back on tamoxifen, the devil i already know. anyway, i would love to hear about the experiences of others on femara with their hair and how you dealt with it. did you take Biotin, other supplements, use Rogaine? anything. thank you! valerie __________________ 8/09 - IDC 1.8 cm triple positive, lumpectomy left breast 10/09 began chemo (taxotere & carboplatin) and weekly herceptin. 1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010. 2/10 began 7 wks of radiation 6/10 mom dies of primary peritoneal ovarian cancer 8/10 got my last remaining ovary out 10/10 mammogram all clear 3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US needle biopsy proved the largest to be old inflamed cyst -phew! 7/10 switched to Arimidex 8/9 switched to Femara - allergic to arimidex Femara made me lose hair quickly so switched to Aromasin Aromasin made my hair fall out too and the bone pain was too much. back on Tamoxifen 1/2013. blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer. cancer's screwing with another man i love 2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!