HER2 Support Group Forums - View Single Post - Please post your two cents on Herceptin "side effects" real or perceived!

tdonnelly · 07-28-2007, 07:03 AM

I am receiving Taxol and Herceptin. My first cycle I had severe bone pain and burning with each bowel movement; I then started rectal bleeding. My second cycle; severe bone and joint pain. My vision tends to be blurry; just after receiving treatment; headaches lasting several days. Water retention. Chest pressure and shortness of breath when walking.

I am told I will need Herceptin for one year. What lasting effects will I have to endure?
When I tell my Doctor/nurse side effects they tell me they never heard of this. I do not like being dismissed in this way. The medical profession is doing a great disservice to all Breast Cancer patients with that attitude...Sharing of information is so important for all of us and future generations...

11/28/06 Infilitrating Ductal Carcinoma Stage II HER2 Positive
Lumpectomy/Portacath surgery.
4 cycles of A/C
To date: 2 cycles of Taxol/Herceptin/2 more to go; then Radiation.
06/2007 Nodules noted in left breast: Hoping chemo will shrink them. ?

I would like to hear from others regarding Herceptin.

07-28-2007, 07:03 AM	#243
tdonnelly Senior Member Join Date: Jul 2007 Location: BridgeView IL Posts: 116	Herceptin Side Effects I am receiving Taxol and Herceptin. My first cycle I had severe bone pain and burning with each bowel movement; I then started rectal bleeding. My second cycle; severe bone and joint pain. My vision tends to be blurry; just after receiving treatment; headaches lasting several days. Water retention. Chest pressure and shortness of breath when walking. I am told I will need Herceptin for one year. What lasting effects will I have to endure? When I tell my Doctor/nurse side effects they tell me they never heard of this. I do not like being dismissed in this way. The medical profession is doing a great disservice to all Breast Cancer patients with that attitude...Sharing of information is so important for all of us and future generations... 11/28/06 Infilitrating Ductal Carcinoma Stage II HER2 Positive Lumpectomy/Portacath surgery. 4 cycles of A/C To date: 2 cycles of Taxol/Herceptin/2 more to go; then Radiation. 06/2007 Nodules noted in left breast: Hoping chemo will shrink them. ? I would like to hear from others regarding Herceptin.