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Old 06-15-2013, 08:08 PM   #37
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Lightbulb Re: kadcyla side effects

Penny, I am relieved to hear you say symptoms come and go at any given time because mine have been doing that and I've been wondering if it's my imagination or talking myself into it. I am sorry you threw up thO and hope you are doing better I have ondesttron (spelling?) zofran I think. It works really well and I take it the first sign of nausea. Melt in mouth and individually wrapped so easy to carry with. Causes possible constipation but I haven't needed it regularly so even tho I'm prone to constipation, I haven't had a problem. The fatigue is hitting me but I've been able to do more because I really have been feeling better in general. The fatigue mainly hits late afternoon and evening. I wake up w headache in morning and it goes away as I start moving. I'm still wondering if it's my neck which I suppose could be the joint/ muscle pain??? All that I do know is I have never in my life been so focused on every twinge and bowel movement in my life as I have since all this started!!!! I try not to focus but it's hard to stop! Bad habit. I had my first follow up CT thur so this is a very long weekend and I have head and neck MRI mon. We haven't done markers recently so I have no idea where they are at. I'm hoping even though symptoms are irratic you at least are feeling good otherwise. Positive thinking.,,,.
Take care,
Cathy
__________________
3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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