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Old 03-01-2016, 08:46 AM   #3
snolan
Senior Member
 
Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
Re: going off tamoxifen

I just stopped my tamoxifen last week after 5 yrs. I was getting water retention too. And have had a steady wt gain over the years. I haven't seen any changes yet but realize it will take a while to get it out of my system. I wasn't supposed to stop taking it until my next visit with my Dr in May but figured what was two months, and I can report any changes when I do go to my appt. My Dr was leaving it up to me if I wanted to stop or cont with the now recommended 10 yr treatment. Since I was Stage I I feel comfortable in stopping it as does my Dr.
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dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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