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v-ness · 02-12-2016, 02:09 PM

hi - i have continued on tamoxifen even though my five years were up last april because my boyfriend was diagnosed with stage 4 cancer. i wanted any anti-cancer ammo i could get in my corner for myself because i strongly believe in stress = cancer. in may 2014 i came home from italy and got a clot in my leg from the flight and tamoxifen and i have been on coumadin ever since, with difficult regulating. i think if i went off tamoxifen, i would get to come off that too. i don't know how much good tamoxifen is doing me anyway, i had a total hysterectomy in august 2010 and am obviously post-menopausal (i couldn't take any of the AI's, bad reactions). have any of you gone off tamoxifen and lost weight? i used to have the best metabolism and i also exercise, but now i am getting yet another tamoxifen SE - water retention in my legs. i would rather try to prevent a recurrence in other ways at this point. de-stress by working out, various supplements like D and turmeric, etc. thank you!

02-12-2016, 02:09 PM	#1
v-ness Senior Member Join Date: Nov 2009 Location: western ma Posts: 280	going off tamoxifen hi - i have continued on tamoxifen even though my five years were up last april because my boyfriend was diagnosed with stage 4 cancer. i wanted any anti-cancer ammo i could get in my corner for myself because i strongly believe in stress = cancer. in may 2014 i came home from italy and got a clot in my leg from the flight and tamoxifen and i have been on coumadin ever since, with difficult regulating. i think if i went off tamoxifen, i would get to come off that too. i don't know how much good tamoxifen is doing me anyway, i had a total hysterectomy in august 2010 and am obviously post-menopausal (i couldn't take any of the AI's, bad reactions). have any of you gone off tamoxifen and lost weight? i used to have the best metabolism and i also exercise, but now i am getting yet another tamoxifen SE - water retention in my legs. i would rather try to prevent a recurrence in other ways at this point. de-stress by working out, various supplements like D and turmeric, etc. thank you! __________________ 8/09 - IDC 1.8 cm triple positive, lumpectomy left breast 10/09 began chemo (taxotere & carboplatin) and weekly herceptin. 1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010. 2/10 began 7 wks of radiation 6/10 mom dies of primary peritoneal ovarian cancer 8/10 got my last remaining ovary out 10/10 mammogram all clear 3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US needle biopsy proved the largest to be old inflamed cyst -phew! 7/10 switched to Arimidex 8/9 switched to Femara - allergic to arimidex Femara made me lose hair quickly so switched to Aromasin Aromasin made my hair fall out too and the bone pain was too much. back on Tamoxifen 1/2013. blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer. cancer's screwing with another man i love 2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!