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Re: Supplements?
I take folic acid at the recommendation of my onc, CoQ10 at the recommendation of my endocrinologist, she believes it is helpful in protecting the heart and since I am on Herceptin long term I am hoping it helps. So far after 5 years of Herception my heart function has remained unchanged at 65-70. I also take vitamin D, Calcium, magnesium zinc, fish oil and vitamin C. I eat healthy foods and try to limit the amount of sugar and carbs I consume.
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.
Debbie K
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