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StephN · 07-28-2006, 11:04 AM

This part of Aquinas' post was disturbing to me.

A private club is the LAST thing Christine had in mind when she developed the idea of this web site.

Some of us are more active in responding to posts than others, but we do not consider ourselves clubbish, cliqueish or anything of the kind. We enjoy reaching out and encouraging newcomers is part of that - including to Aquinas.

The fact that many of us are even still alive to turn on our computers is remarkable. And for me I want to interact with others like me, as well as give hope to some poor soul who has just been blindsided with bad news that they can and will get through it.

Johanna, I think Sandy was concerned about you and was just reaching out in her own way. Glad you are so full of life and committment to educating other women in your country. We are here to support you in this effort.

07-28-2006, 11:04 AM	#20
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	"Private Club mentality"??? This part of Aquinas' post was disturbing to me. A private club is the LAST thing Christine had in mind when she developed the idea of this web site. Some of us are more active in responding to posts than others, but we do not consider ourselves clubbish, cliqueish or anything of the kind. We enjoy reaching out and encouraging newcomers is part of that - including to Aquinas. The fact that many of us are even still alive to turn on our computers is remarkable. And for me I want to interact with others like me, as well as give hope to some poor soul who has just been blindsided with bad news that they can and will get through it. Johanna, I think Sandy was concerned about you and was just reaching out in her own way. Glad you are so full of life and committment to educating other women in your country. We are here to support you in this effort. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.