|
Not good news..
I asked to move the scan foward in the trial because my breathing & caughing is getting worse and lacking of energy..a lot.
anyhow wednesday i was told that there is a 17% increase and basically I am still in the trial because recist is saying 20% is progression.. but looking for another one before my health deteriorate further and i cannot enter any criteria.
But not good so here i am looking for clinical trial again and wondering what is it all for. I dont think i'll never be able to go on a trip again and the weather is awful here and in the minus (celsuis) so not even enjoying my walk with the dog.. I so know I am not the only one but I so not deserved that life.. i went at a diner with friends tonight and everyone was beaming with health, talking about their babies and future plans and their problems seemed wonderful to me. We played a game and unknown to them I was finding it so energy demanding that it was hard to enjoy it.
Anyhow I am holding on to the January feeling I had where when after a few weeks after starting the trial I felt so much more energy so quickly and could enjoy a great new year eve..
on the road again..
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
|