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Old 01-05-2011, 11:24 AM   #25
Delaney
Senior Member
 
Join Date: May 2010
Location: Ireland
Posts: 271
Re: 12 years and still counting

Elaine, didnt mean to cause any upset by asking you your stats. Anytime I read a post by a longterm survivor, I automatically look to see if they are er-/pr- like myself. I know hormone negative is harder to treat as we cant have the hormonals like femara and tamoxifen, and also some chemos dont work on us, so I am always on the lookout for an uplifting story on the hormone negatives, more so since I reached Stage iv. Thankfully there are a few er-pr- here, StephN and Courtney come to mind and they are doing well.
Anyway, its just thrilling that you are 12 years out! What a milestone, and long may it continue. I LOVE modern drugs.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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