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Old 10-19-2011, 11:13 AM   #1
jml
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Join Date: Dec 2006
Posts: 415
PET Scan results

"IT LOOKS REALLY GOOD!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!"
That's the response I got back from the Nurse Practitioner after my PET scans yesterday when I emailed her to ask her to keep an eye out for results.
All those CAPS & exclamation points - it's gotta be good news!
I don't have any additional info, haven't seen the report, but since I trust them infinitely, I know I can completely relax, knowing they're pleased with the results and we'll discuss them when I see them tomorrow.
Anything that's not bad is good, and so long as I don't have to scramble & search for another treatment combo, and we can stick with the status quo, I'm happy & relieved.
While I don't want to speculate what the report might say, I still hold out hope for NED, or his close 1st cousin MED - Minimal Evidence of Disease! (HA! I made that up).

Successful treatment for anyone of us is a victory for ALL of us!

Keep the Faith~

Jessica
Dx-5/17/02 - 33 yo; Stage IV
L IDC w/single liver met
Herceptin + Navelbine x 8 weeks - No response; progress to innumerable,immeasureable liver mets
ISIS 2504 + Herceptin - 6 mos, partial response
Taxol + Herceptin x 13 weeks to NED!
NED for 1 year
9/04 - Single liver lesion recurrence
Taxol + Herceptin - on/off to beat back lesion
12/05 - R Hepatectomy; Liver NED until 2009
3/06- Local recurrence - Left breast, IDC & DCIS, but holding treatment while continue to heal from Hepatectomy.
12/06 - L mastectomy + reconstruction through 8/07
10/07 - Recurrence - supraclav nodes
Gemzar + Herceptin - on/off controlling nodes thru
9/08 - 7wks rads to supraclav nodes
10/08 - Acute Renal Failure - nodes in belly stricturing kidneys. placed permanent ureteral stents
Back on Gemzar + Herceptin, but no longer responding.
05/09 - Tykerb + Xeloda - partial response x 5 mos
10/09 - Xeloda + Herceptin - no response, disease progresses
2/10- Ixempra + Herceptin - partial response x 12 wks.
Discovered single brain lesion x 4mm & liver lesions growing while screening for TDM1 + PI3Kinase study.
6/10 - Novalis to treat brain met - SUCCESSFUL!
6/10 - Chemo-embo directly to liver w/Adriamyacin to de-bulk liver lesion.
8/10 - Screened & Started TDM1 EAP
Immediate response, disease in belly responds dramatically.
2/11- questionable progression of lung nodules
Discontinue TDM1
3/11 - PI3Kinase + Herceptin - intial good response in 1st 6 weeks but LFT's elevated & major GI & colon spasms
7/11-Discontinue PI3Kinase + Herceptin study;
Disease progression - 2 small lesions in colon – docs have never seen this before in BC!
8/11 –Start new combo Halaven+Herceptin
10/14/2011 -Completed 3 cycles (9 wks)Halaven+Herceptin...
10/18/2011 - Scanxiety time -1st scans since starting this regimen

Last edited by jml; 10-19-2011 at 11:21 AM.. Reason: typos~
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