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Becky · 02-21-2011, 02:53 PM

Was the second met in an odd region where treating it caused these symptoms? Was it large or very near the first one - you somehow have to get to the bottom of why this has happened to your mother as this is a rare side effect. I am sure others with real experience will chime in (as I have not) but this is a severe reaction. What do all the doctors say? Was the treatment given correctly? Has there been a follow up MRI to be sure of what is going on? Are you 100% positive nothing is happening in the body?

Just questions - don't take it wrong but you are right to be concerned as this doesn't sound like the experiences of women on this board, some of whom had more tumors and more treatment.

02-21-2011, 02:53 PM	#2
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: Severe Symptoms: Brain Mets & Decadron Was the second met in an odd region where treating it caused these symptoms? Was it large or very near the first one - you somehow have to get to the bottom of why this has happened to your mother as this is a rare side effect. I am sure others with real experience will chime in (as I have not) but this is a severe reaction. What do all the doctors say? Was the treatment given correctly? Has there been a follow up MRI to be sure of what is going on? Are you 100% positive nothing is happening in the body? Just questions - don't take it wrong but you are right to be concerned as this doesn't sound like the experiences of women on this board, some of whom had more tumors and more treatment. __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"