HER2 Support Group Forums - View Single Post - T cells that recognize HER2 receptor may prevent HER2+ bc recurrence

agness · 01-04-2016, 09:39 PM

Ya know, I think they should immunize all us HER2 gsls the second we get to NED. I understand that it takes best when the tumor burden is low and with concurrent Herceptin treatment. They know it's safe and we don't care about a multi-strain vaccine against multiple types of BC. A 40% chance that the University of Washington/Fred Hutch vaccine works is better than the four strains of HPV that that new vaccine might possibly prevent. No? Wouldn't you get it if you could? What if you knew it was shelf stable and well-tolerated for over 15 years of study? It doesn't seem right as our sisters fall.

01-04-2016, 09:39 PM	#2
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: T cells that recognize HER2 receptor may prevent HER2+ bc recurrence Ya know, I think they should immunize all us HER2 gsls the second we get to NED. I understand that it takes best when the tumor burden is low and with concurrent Herceptin treatment. They know it's safe and we don't care about a multi-strain vaccine against multiple types of BC. A 40% chance that the University of Washington/Fred Hutch vaccine works is better than the four strains of HPV that that new vaccine might possibly prevent. No? Wouldn't you get it if you could? What if you knew it was shelf stable and well-tolerated for over 15 years of study? It doesn't seem right as our sisters fall. __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.