Thread: Gaining Control
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Old 11-16-2007, 06:21 PM   #10
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink Sharing Information For The Benefit Of All

Yes, AA, I have wended my way to an endocrinologist, seeking relief my incessant hot flashes, in utter desperation. Upon finding a gem, I suddenly realized -- 11 yrs in bc -- that every one of us should have one of these! It is a whole fresh perspective of the body and its processes. I had estradiol and testosterone and a whole panel of NEW tests when I thought I'd seen it all. We can always learn something new. Every day, hopefully. If we are open.

I have just finished a book called UNLOCK YOUR HORMONES by Dr. Graeme Williams, 30 yrs in practice. It is eye-opening. My NY nutritional oncologist who I affectionately call my nut onc/guru is well-versed in supplements, his area of specialty. From him I have learned meditation and guided imagery, which Steph elucidates about in depth. The benefits of these are invaluable. Mainstream, cutting edge oncs are given no education in this area in our medical schools, much to OUR detriment I believe. It is ancient (Eastern) wisdom in modern day terms. A meeting (finally) of the East and the West -- that is proving to change, and save, lives. Praise be! Treating the whole person (holistic medicine) is so obviously necessary, rather than addressing symptoms of disease and dysfunction. Finding an expert who covers this plus oncology and nutrition, including supplements, which remain an enigma, unregulated and yet full of promise.


As many PM me asking me for MY LIST, I have tried to provide my information -- specifically recommended for me with my pathology, from my oncological nutritionist whose expertise is in INTEGRATIVE ONCOLOGY. This includees: Supplements, meditation, guided imagery and the like. He is quite a remarkable and learned man who updates my list as often as I would like. I now visit him annually, yet have access to his knowledge by phone or email throughout the year. I am blessed to have been led to such a gem, a fountain of information. I sing his praises often... I have posted the link to my 11/5 thread, GAINING CONTROL, above...
Andi

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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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