Re: Its all going wrong
I'm posting this here in case anyone else has these symptons and it will give reassurance. I met with a neurologist today and he is adamant that the vision problems I've been having have 'nothing to do with cancer'. He thinks its due to hormones, being pushed into the menopause by chemo didnt help. I had migraines in my teens and he said that was also due to a surge in hormones.
He said the lesion shown on the recent brain mri is 'absolutely tiny' and targeted radiation should deal with that. He said the lesion was totally in the wrong location to cause any vision problems. This disease is never straightforward!
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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