HER2 Support Group Forums - View Single Post - first ever international meeting on inflammatory bc and its in Texas in December!

myraazzopardi · 08-31-2008, 04:55 AM

Hi Lani.

thanks for the info. I have been off for a while having a masectomy for pagetts that i may have had before i had lumpectomy for her 2 positive. My op was in april and i am fine. I have a horrible and wicked onc. here in Spain. I have the ocasional blood test will have a ecograph which did not show up the pagetts in fact had it for over a year before they believed me. I am having no tests to see if I could have mets from the her 2 which was about may 2006. No lymph nodes affected but some removed. I test for breast lumps but what about brain, bones and poss. liver mets. Sorry to put this into you but need some answers. I have started up a group on facebook under my name. I am happy though. In anticipation, thanks.

08-31-2008, 04:55 AM	#2
myraazzopardi Member Join Date: Mar 2007 Location: Costa del Sol. Spain Posts: 23	Her 2 Then Pagetts Disease Hi Lani. thanks for the info. I have been off for a while having a masectomy for pagetts that i may have had before i had lumpectomy for her 2 positive. My op was in april and i am fine. I have a horrible and wicked onc. here in Spain. I have the ocasional blood test will have a ecograph which did not show up the pagetts in fact had it for over a year before they believed me. I am having no tests to see if I could have mets from the her 2 which was about may 2006. No lymph nodes affected but some removed. I test for breast lumps but what about brain, bones and poss. liver mets. Sorry to put this into you but need some answers. I have started up a group on facebook under my name. I am happy though. In anticipation, thanks.