HER2 Support Group Forums - View Single Post - almost 14 years NED breast cancer and apparently it's back in my lungs

Cathya · 05-24-2018, 10:09 AM

OMG I just got some fabulous news!! My CA125 was 292 in early March, 359 in April and today it had DROPPED to 62. This means (so far as we know) that it was high due to the bc mets in my lung lining and secondly that the treatment I have been on for 3 weeks is working. Normally the CA125 is used to identify a recurrence of ovarian cancer (my biggest worry) but sometimes if your bc recurrence is in the lining of an organ it rises....as it appears to have done in my case. So now I have hope again as treating ovarian cancer and bc at the same time would be very difficult as the treatments counteract each other. Wow, I am so happy today. Still stage 4 but happy none the less.

God bless you all and I hope you all have some good news to celebrate. I bought ice cream. hahaha

Cathy

05-24-2018, 10:09 AM	#73
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: almost 14 years NED breast cancer and apparently it's back in my lungs OMG I just got some fabulous news!! My CA125 was 292 in early March, 359 in April and today it had DROPPED to 62. This means (so far as we know) that it was high due to the bc mets in my lung lining and secondly that the treatment I have been on for 3 weeks is working. Normally the CA125 is used to identify a recurrence of ovarian cancer (my biggest worry) but sometimes if your bc recurrence is in the lining of an organ it rises....as it appears to have done in my case. So now I have hope again as treating ovarian cancer and bc at the same time would be very difficult as the treatments counteract each other. Wow, I am so happy today. Still stage 4 but happy none the less. God bless you all and I hope you all have some good news to celebrate. I bought ice cream. hahaha Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18