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chrisy · 08-18-2011, 12:02 PM

Courtney, I'm with Laurel on this - except I see no reason to be polite. That cancer does not belong, kick it's but outta there no apologies needed. And I just read your second post on this thread, about the necrosis - maybe they have decided to just slink away as they should.

I know how it hits you in the face, being a frequent flyer at the treatment center - they should at least give you perks! I was up at UCSF this morning and not only do they all know me ("chris, can you show me your id?") but I am the only patient known to have memorized my MRN (medical record number). I gave directions to 2 other patients looking for the infusion center this morning and indeed, had "fun" doing it. It is a crazy ride.

As my first oncologist said it, "nobody wants to die, because life is so much fun!" No, cancer is not fun, but LIFE can be still be. That's why we fight for it.

You are a real trooper and continue to be an inspiration to so many, including me. Keep focused, one foot in front of the other, and remember to breathe!

Much love
Chris

08-18-2011, 12:02 PM	#18
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: Intrathecal Herceptin Update Courtney, I'm with Laurel on this - except I see no reason to be polite. That cancer does not belong, kick it's but outta there no apologies needed. And I just read your second post on this thread, about the necrosis - maybe they have decided to just slink away as they should. I know how it hits you in the face, being a frequent flyer at the treatment center - they should at least give you perks! I was up at UCSF this morning and not only do they all know me ("chris, can you show me your id?") but I am the only patient known to have memorized my MRN (medical record number). I gave directions to 2 other patients looking for the infusion center this morning and indeed, had "fun" doing it. It is a crazy ride. As my first oncologist said it, "nobody wants to die, because life is so much fun!" No, cancer is not fun, but LIFE can be still be. That's why we fight for it. You are a real trooper and continue to be an inspiration to so many, including me. Keep focused, one foot in front of the other, and remember to breathe! Much love Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure Last edited by chrisy; 08-18-2011 at 12:09 PM..