HER2 Support Group Forums - View Single Post - Tykerb/ herception in stage 3a locally advanced patients

Lori R · 09-15-2010, 07:39 AM

Joletta,
I will be very interested in the response to your thread.

I am Stage IV and did not receive strong support from my oncologist when I asked about Herceptin/Tykerb (without Xeloda). My Onc (whom I generally like) danced around with statements that Tykerb isn't a "walk in the park".

I am going to pin her down when I visit this coming Friday as I want to know what my next step will be in case I have another recurrance.

I do know that Sheila successfully fought (took her 3 months) for the combination, but she is Stage IV as well.

Hmmm....I think bjuce might have been on a Herceptin/Tykerb trial. Maybe she will have insights for earlier stage approaches.

Good Luck....I am with you on pursuing more targeted approaches to treatment!!!

09-15-2010, 07:39 AM	#2
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Tykerb/ herception in stage 3a locally advanced patients Joletta, I will be very interested in the response to your thread. I am Stage IV and did not receive strong support from my oncologist when I asked about Herceptin/Tykerb (without Xeloda). My Onc (whom I generally like) danced around with statements that Tykerb isn't a "walk in the park". I am going to pin her down when I visit this coming Friday as I want to know what my next step will be in case I have another recurrance. I do know that Sheila successfully fought (took her 3 months) for the combination, but she is Stage IV as well. Hmmm....I think bjuce might have been on a Herceptin/Tykerb trial. Maybe she will have insights for earlier stage approaches. Good Luck....I am with you on pursuing more targeted approaches to treatment!!! __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)