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Old 11-28-2007, 02:29 AM   #12
Joanne S
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Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
probabilities? ratios? volumes? differences? statistics? percentages? forecasting

Lani, You're obviously very intelligent and knowledgeable person. I don't know if you have first hand experience as a bc patient or supporter or how you've come to be involved in contributing to HER2. Perhaps it's a big secret. Funny, seems to me ---like--- you see me, but I can't see you. In addition, I can't even send you a private message or an e-mail? and there's nothing on your profile? I mean no disrespect---you probably have your reasons---it just makes me feel a little uncomfortable---like you are staring at my naked core (cuz I spill my guts out here), but I don't see you or know who you are or anything about you at all---other than you are someone who regularly cuts and pastes a lot of current study stuff. Many HER2ers certainly appreciate your posts.

I do try to make all these issues and concerns less complicated that's for sure. I'm not sure what's oversimplied, but I guess it doesn't matter at this point. All I know is that Herceptin does help a whole lot of HER2 people, but not all HER2ers.

So it sounds like it's not worth the effort to inquire or investigate or even discuss this any further. Sounds like it's all about the monies $$$$$---- so we won't know the answer to that recurrence/survival question.---that is unless I have a recurrence (still then I probably won't know if the recurrence it is a repercussion of Herceptin or not or something else and/or somemore something elses) or unless I die ---well then it won't matter to me anyway. But if I don't have a recurrence, I'll just be very happy and attribute it to all my personal diagnosis criteria and treatment combinations.

I guess that's the way I feel about most of these study results---probabilities? ratios? volumes? differences? statistics? percentages? forecasting? predications? inconclusive? additional studies required? where do I fall??? where do my her2 sisters fall? hum? I still have no clue after reading them.

I'm guess I'm pretty simple minded and I think I gotten myself totally wacko from not having any sleep for a couple of days and having anxiety as I will be leaving to the hospital for surgery in an hour.
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Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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