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Re: No Herceptin
As a stage 1 HER2+++ I was diagnosed before trastuzumab was available other than off-label while the trial was still in progress. I didn't know anything about trastuzumab at the time but did request to participate in clinical trials for HER2 positive bc. My onc failed to mention the trial to me, or to help me with accessing information about possible clinical trials myself. I instead had CAFx6, rads, and a brief run of tamoxifen but no trastuzumab, no taxane, and no AI. I have so far not recurred.
Because it is now standard treatment for most HER2 positive patients, we don't know what the percentage is who would be like me, or which patients they might be.
There are others here who have also posted over time who did not receive trastuzumab.
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Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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