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Jackie07 · 05-23-2009, 09:03 PM

Welcome Ellz,

First let me say how impressed I am with your dedication to your Mom. And I am so sorry that she has to be enduring so much pain.

Her pain could well be related to the cough and fatigue. Since she's able to get on the stationary bike and walk, I think (just personally) it's probably OK to wait for the PET scan.

The most recent guideline discourages doctors from prescribing bone scans and some other tests. The reason they give is it does not improve the outcome. I had 'forced' my doctor to give me the bone scan some time ago after I had seen it in many members' signature. They must have put out the new guideline because many oncologists had experienced the pressure of all kinds of request for scans.

I'll be praying for your Mom and hope she will at least get her pain reduced.

05-23-2009, 09:03 PM	#3
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Welcome Ellz, First let me say how impressed I am with your dedication to your Mom. And I am so sorry that she has to be enduring so much pain. Her pain could well be related to the cough and fatigue. Since she's able to get on the stationary bike and walk, I think (just personally) it's probably OK to wait for the PET scan. The most recent guideline discourages doctors from prescribing bone scans and some other tests. The reason they give is it does not improve the outcome. I had 'forced' my doctor to give me the bone scan some time ago after I had seen it in many members' signature. They must have put out the new guideline because many oncologists had experienced the pressure of all kinds of request for scans. I'll be praying for your Mom and hope she will at least get her pain reduced. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe